CHI '26 April 13-17, 2026 | Barcelona, Spain

Laughing Through the Struggles

HONORABLE MENTION

Understanding ADHD Experience and Community Engagement Through Memes and Comments on Instagram

Fan Zhang Independent Researcher
Jiaying Fu Beijing Normal University
Kexin Chen University of Pennsylvania
RAY LC City University of Hong Kong
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Research Summary

Abstract

While public discourse often reduces Attention-Deficit Hyperactivity Disorder (ADHD) to stereotypes that overlook the invisible struggles of those who live with it, ADHD people are increasingly using social media to express their experiences on their own terms. On platforms like Instagram, memes have become a powerful and accessible medium for expressing everyday challenges through humor and relatability.

This study analyzed 350 ADHD-related memes and over 28,000 associated comments to explore how ADHD was expressed and engaged with in online spaces, and consulted a neurodevelopmental science and clinical researcher. Findings show that memes depict behavioral inconsistencies, internal conflicts, and societal pressures, while comments reveal strong resonance, personal identification, and peer support, including informal self-diagnosis and shared experiences.

Research Questions

RQ1

What lived experiences of ADHD are communicated through ADHD memes?

RQ2

How do ADHD memes employ narrative and rhetorical forms to engage users?

RQ3

How do users engage with ADHD memes on Instagram?

0 ADHD Memes Analyzed
0 Comments Collected
0 Topics Identified
0 Narrative Forms

Research Methodology

This study employed a multi-step methodology to analyze ADHD-related memes and comments, combining qualitative content analysis with computational methods.

Data Collection

Collected memes from Instagram using #adhdmemes hashtag. Identified 14 public accounts dedicated to ADHD-related content.

Qualitative Analysis

Coded memes for content, form, and emotion using Krippendorff's Alpha for inter-rater reliability (0.841, 0.800, 0.618).

Computational Analysis

Emotion classification using DistilRoBERTa model. BERTopic modeling for thematic patterns (coherence: 0.86, diversity: 0.63).

Expert Consultation

Consulted neurodevelopmental science and clinical researcher for contextual insights and validation.

Key Research Findings

RQ1

Lived Experiences of ADHD

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Our meme analysis revealed lived experiences of ADHD marked by inconsistent behaviors, internal conflicts, and the ways ADHD people navigate their everyday lives with invisible labor and societal challenges.

Living the Variability: Inconsistencies in ADHD Behaviors

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Unpredictable Stimulation Effects

Memes portrayed ADHD people as constantly seeking stimulation to maintain dopamine levels, yet effects varied widely, bringing clarity, calm, or sudden sleepiness.

View Figure: Stimulation Effects
Forgetful and Hyper-Memorable

Memory in ADHD was portrayed as unpredictable and selective, with frequent lapses in everyday tasks alongside vivid recall of emotional details.

View Figure: Memory & Self-Presentation
Interest-driven Productivity

Wide variation in focus and output depending on personal interest and task urgency. High-quality results through hyperfocus contrasted with struggles in routine tasks.

View Figure: Productivity Patterns
Creative Ideation vs. Execution Gap

The gap between generating ideas and taking action. Memes described experiences like "having the best idea and then nothing."

Compassion Discrepancies

ADHD people shown as empathetic toward others yet self-critical, supporting others with demanding tasks while avoiding their own.

Self-Presentation Challenges

The tendency to appear outwardly fine while experiencing invisible struggles, downplaying difficulties to avoid showing vulnerability.

Living in Mental Dissonance: Internal Conflicts

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Self-Awareness in Paralysis

Deep and often painful self-awareness: being fully aware of what needs to be done yet unable to initiate or complete the task.

Conflict between Structure and Autonomy

A contradictory relationship with structure: resisting imposed structure while acknowledging external systems as helpful or necessary.

View Figure: Structure vs. Autonomy
Ambivalence in Social Desires

Duality between desire for connection and simultaneous experience of social exhaustion, affecting relationships and social interactions.

View Figure: Social Desires

Navigating ADHD: Personal Struggles and Societal Pressures

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Emotional Burden

17 distinct emotional expressions identified. Top five: frustrated, sad, ambivalent, angry, and anxious.

View Figure: Emotion Examples
Functioning with Invisible Labor

Substantial effort invested in completing everyday tasks. Customized coping systems and strategies depicted as exhausting or only partially effective.

View Figure: Functioning with Invisible Labor
Challenges in Diagnosis and Treatment

Path to formal diagnosis depicted as complicated, delayed, or emotionally draining. Mixed experiences with treatment and systemic barriers.

View Figure: Diagnosis Challenges
Trivialization and Stigma

Behaviors often moralized or stigmatized. Overgeneralization and misinformation complicating public perceptions.

View Figure: Trivialization & Stigma
RQ2

Narrative and Rhetorical Forms

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Analysis identified 21 distinct narrative and rhetorical forms across ADHD memes, categorized into six groups reflecting how memes creatively employ various forms of expression.

🎭

Subversive & Reflexive Humor

Self-deprecation (154) and satire (30) as coping mechanisms and critique of societal norms.

View Examples
📝

Narrative Positioning

First-person perspective (77), seeking resonance (13), appeal (2), self-clarification (2).

View Examples
🎬

Cultural Reference

Pop culture references (109), celebrities (6), religion (5), trending topics (2).

View Examples
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Rhetorical Techniques

Metaphor (61), exaggeration (37), wordplay (6), unexpected twist (4).

View Examples
⚖️

Comparison

Different situations (25), with non-ADHD (17), other conditions (8), ADHD characteristics (7).

View Examples
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Dialogic Construction

Self-talk (11), dialogue between ADHD individuals (7), with therapist (7).

View Examples
RQ3

Community Engagement

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Analysis of 28,118 comments revealed how users engage with ADHD memes through emotional responses and thematic patterns.

Emotion Classification Results

Neutral
62.87%
Surprise
10.77%
Anger
6.72%
Sadness
6.15%
Joy
5.65%
Disgust
4.78%
Fear
3.07%

Five Major Comment Themes

01
Emotional Reactions & Community Engagement

Brief, affect-laden responses with expressive emojis and direct tagging of other users.

02
Resonance and Feeling Seen

Strong sense of personal resonance: "Me!!!", "I feel attacked", "I feel so seen".

03
Sharing Personal Experiences

Detailed self-disclosure about daily life with ADHD: routines, cognitive patterns, social interactions.

04
Self-Diagnosis Through Memes

Comments reflecting on whether they might have ADHD: "Do I have ADHD??"

05
Overlap with Other ND Conditions

Connections between ADHD and other conditions, particularly autism.

Key Insights

🤝

Memes as Validation Space

ADHD memes function as lighthearted spaces for validation and empathy within online ADHD communities. They help reduce stigma by building more accurate and nuanced public understandings.

⚠️

Tensions with Misinformation

While raising awareness, exaggerated or oversimplified portrayals can lead to misinformation and potentially contribute to overdiagnosis or misdiagnosis due to over-endorsed self-report.

🔍

Expert Reflections

Clinical expert noted that while accurate, memes often involve oversimplification. The comorbidity rate may exceed 70%, making isolated trait depictions potentially misleading.

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Systemic Challenges

Memes reflect structural issues in healthcare: long waiting lists, lack of insurance coverage, and the feeling that diagnosis is "a matter of magic" or "a privilege".

"Healthcare systems still prioritize 'visible disabilities, visible pain, and visible diseases', often underestimating mental health and neurodivergence—a reality ADHD memes bring humorously yet critically into view."
— Clinical Expert Reflection

Design Implications

01

Low-barrier Expressive Tools

Design informal, humorous formats similar to memes to make expression feel more approachable. Incorporate meme-like formats into co-design activities to lower linguistic and social barriers.

02

Affect-aware Features

Support lightweight mixed-affect reactions and optional visual mood markers, enabling users to signal layered feelings without being forced into a single positive or negative label.

03

Inclusive Sense-making Tools

Support inclusive sense-making with lightweight community annotation or optional tags (e.g., self-identified, formally diagnosed, ally) that foreground content as personal experience.

04

Contextual Enrichment

Offer non-intrusive contextual features that allow viewers to learn more about ADHD concepts beyond memes, such as links to vetted resources on assessment pathways.

Contributions

Understanding ND Self-Expression

Demonstrated how memes function as an interactional mechanism for neurodivergent storytelling and identity formation, centering ADHD people's lived experience.

Digital Mental Health Research

Contributed to digital mental health research by showing how memes facilitate self-expression, validation, and community-building while raising questions about misinformation.

Design Directions

Informed design directions for social platforms: meme-inspired low-barrier expressive tools and contextual features that mitigate misinterpretation and misinformation.

Conference CHI '26: Proceedings of the 2026 CHI Conference on Human Factors in Computing Systems
Keywords ADHD, Meme, Online Health Communities, Social Media, Neurodivergence, Self-Expression, Community Engagement
Overview Methods Findings Discussion Implications